Story time: My little guy needs an exam, teeth cleaning, and a couple issues addressed before getting his teeth sealed. I am looking for a special needs dentist that has access to moderate sedation. (Child is still awake (could fall asleep) but relaxed and won’t remember the procedures). Buster is developmentally less than 12 months old right now and will not allow you to look in his mouth, touch his mouth, and will bite you, not let go, clamp his jaws shut, and cause himself great trauma and anxiety. He will need sedation. Everyone was compassionate and kind even in rejection except this one lady that would not let me talk or explain and rudely thought she knew better than me even though she had never met my son before. Our life is very happy. Even though Buster has level 3 autism and global delay, we have a very happy life and he is a happy child. That doesn’t make situations like this less hard. What should have been a simple appointment scheduling was 10 office calls, a made and cancelled appointment, and now a referral to St Louis for something that should be relatively simple. Our life is happy and we all make the best of things but level 3 autism makes everything harder and more complicated. #autismawareness#autism#autismmom#autismdad#severeautism

Just over a week has passed since Buster started leucovorin therapy and we are seeing great results. Introducing a spoon was a success! #autism #autismawareness #autismmom #leucovorin

My level 3 autistic son with global delay just let me change his poopy diaper without fecal smearing, sticking his hands in it, or fighting. He laid there and let me clean him while he relaxed. This is the first time ever. This is Day 6 of leucovorin treatment. This is a huge blessing. #autismmom #autismmomlife #autismdad #autism #autismawareness

Not everyone’s autism journey is the same but if I can help anyone on their path then I want to do it. I am not giving medical advice. I am just sharing our journey as my little boy grows to see what helps him along the way. My videos and blogs are for informational and entertainment purposes only. #autism #autismawareness

Buster did start leucovorin therapy a few days ago but I think I should mention that he also started iron supplementation due to very low ferritin levels. The doctors told me that low iron stores can cause PICA (along with sensory seeking behavior) and eating non-edible things which Buster struggles with HARD. They also told me the low iron stores cause issues with insomnia and that iron supplementing will help stop him having so much trouble going to sleep at night and waking up often. So while I believe leucovorin is helping Buster a lot even though it is early, I also believe the iron is making a difference. Iron supplementation for autistic children with low ferritin levels could be a game changer and maybe more people should have that checked too. I didn’t know it could be a problem until the doctor suggested checking. #autismawareness #autism #autismsupport #autismmom

I had been asked a few times why I wanted to get Buster started on Leucovorin so badly and the reason is because after over a year of therapies and classes and early intervention…we had less than 5% progress toward any goals and our 2 main goals were quite simple. We wanted to see if there was a more physical and neurological reason that could be preventing his progress. This is why we wanted to try and see if this could help move forward into learning basic skills like responding to simple commands and answering to his name. #autismawareness #autism #leucovorin #autismmom

Posting an update to starting the Leucovorin for Buster. This is day 5 and a note from his teacher! Buster is 3.5 yrs old with severe, level 3, non-verbal autism and global delay. #autism #autismawareness